SMA Awareness Month: Spreading Hope and Advocacy

Engaging in Patient Advocacy

During SMA Awareness Month, individuals and organizations unite to bring attention to spinal muscular atrophy (SMA), a genetic disorder that affects motor function. Join the movement and participate in advocacy initiatives to raise awareness and educate others.

Educating and Involving the Community

Share accurate information about SMA, its symptoms, treatments, and the needs of affected individuals. Organize community events, webinars, and social media campaigns to disseminate knowledge and engage the public.

Get Involved in Advocacy

Participate in lobbying efforts, contact your local representatives, and support organizations that advocate for the rights of individuals with SMA. Advocate for increased funding for research, access to therapies, and equitable healthcare.

Join the Conversation Online

Utilize social media platforms to raise awareness about SMA, share personal stories, and connect with others affected by the disorder. Use relevant hashtags and engage in online discussions to broaden your reach.

Support Research and Care

Donate to organizations funding research into SMA therapies and treatments. Volunteer at support groups, provide respite care to families, or participate in clinical trials to contribute to the advancement of knowledge and care.

Together, We Can Make a Difference

By raising awareness, advocating for policies, and supporting research and care, we can improve the lives of individuals affected by SMA. Make a commitment to participate in SMA Awareness Month and join the fight against this disorder.